This project will build a research infrastructure asset of blood samples from adolescent and adult epilepsy patients for future research and improve the health outcomes for people with Epilepsy.
What is the issue for NSW?
Epilepsy has over 50 different diagnostic sub-types and is often complicated by considerable co-morbidity with mental health issues, learning disabilities and neurodegeneration.
What does the research aim to do and how?
This study will aim to collect and biobank 2,500 epilepsy samples from NSW Precincts & LHD epilepsy clinics using mature, in-depth clinical databases held at Royal Prince Alfred, Westmead and Kolling-North Shore. The EpiGen collection will have transparent & governed use of biosamples & data for patient benefit, research in Sydney, NSW, national or international collaboration.