Project summary
This project involves the integration and linkage of genomic and clinical trials data with clinical and population based administrative health data. Such linkage and integration will provide a better understanding of the risk factors associated with rare diseases and cancer so that personalised treatment and prevention pathways can be developed.
What is the issue for NSW?
The integrated data linkage system will provide the opportunity to improve our understanding and evaluation of clinical management and treatment.
What does the research aim to do and how?
The project aims to:
- establish data governance and consent protocols with scientists and researchers across computational biology, predisposition screening and clinical trial programs
- develop data linkage protocols and resources to integrate genomic and clinical trials data with clinical and population-based administrative health data
- conduct advanced biostatistical and bioinformatics analyses to provide new insights in understanding childhood cancer and rare childhood diseases.
Read more about the work of Luminesce Alliance.
Partnering institutions
- Children’s Medical Research Institute
- Sydney Children’s Hospitals Network
- University of Sydney
- University of NSW
- Children’s Cancer Institute